
About IBD
Info, FAQs & top resources about Inflammatory Bowel Disease.
Inflammatory Bowel Disease (IBD) is a chronic autoimmune condition that causes inflammation in the digestive tract, leading to symptoms like severe abdominal pain, diarrhea, fatigue, and weight loss.
The two main types of IBD are Crohn’s Disease, which can affect any part of the gastrointestinal (GI) tract from the mouth to the anus, and Ulcerative Colitis, which specifically targets the colon and rectum.
While the exact cause of IBD remains unclear, it is believed to be a combination of genetic, environmental, and immune system factors. Unlike Irritable Bowel Syndrome (IBS), which affects gut function without causing inflammation, IBD is a serious condition that requires long-term medical management.
Living with IBD means navigating unpredictable flare-ups, medical treatments, and lifestyle adjustments, but with the right support and knowledge, it is possible to manage symptoms and maintain a fulfilling life. While there is currently no cure, advancements in medication, dietary strategies, and holistic approaches are helping people achieve remission and improve their quality of life. Most importantly, no one has to face IBD alone—there is a strong, supportive community ready to share experiences, advice, and encouragement every step of the way.
Australian IBD Stats
Data from Crohn's & Colitis Australia's IBD State of the Nation report, February 2025.
IBD FAQ
What's the difference between IBD and IBS?
Inflammatory Bowel Disease (IBD) is an umbrella term for conditions that involve chronic inflammation of the digestive tract—primarily Crohn’s Disease and Ulcerative Colitis.
- Symptoms often include persistent diarrhea, abdominal pain, rectal bleeding, weight loss, and fatigue.
- Diagnosis and treatment typically involve colonoscopies, imaging, and medication to reduce inflammation.
Irritable Bowel Syndrome (IBS), on the other hand, is a functional gastrointestinal disorder. It does not involve structural or inflammatory changes in the bowel.
- Common symptoms include bloating, gas, and changes in bowel habits (diarrhea, constipation, or both).
Key Point: While IBS can cause uncomfortable symptoms and disrupt daily life, it doesn’t cause the gut damage seen in IBD. We like to think of IBS as a headache and IBD as a migraine!
I keep hearing about IBD 'flare ups'. What are they?
- A “flare-up” refers to a period where IBD symptoms intensify.
- Common signs of a flare-up include more frequent bowel movements, increased abdominal pain, and sometimes fever or rectal bleeding.
- Flare-ups can vary in intensity and duration—some people experience mild symptoms, while others may have severe complications requiring hospitalisation.
- Possible Triggers: Immune responses from infections, hormonal or even changes in medication can contribute. We are still unsure exactly what causes flares, but we do know it is not diet related!
How is IBD diagnosed?
Medical History & Physical Exam
- Your doctor will discuss your symptoms, family history, and perform a basic exam.
Stool Tests & Blood Tests
- Help rule out infections or other causes of your symptoms.
- Check for signs of inflammation or anemia.
Endoscopic Procedures
- Colonoscopy (with or without endoscopy) is common, allowing direct visual of the colon and sometimes the small intestine. Biopsies help confirm a diagnosis.
Imaging
- CT scans, MRIs, or ultrasound can assess inflammation and complications.
Is IBD life threatening?
- While IBD can be serious and lead to life threatening complications if left untreated, it’s typically manageable with the right treatment plan.
- Effective therapies such as anti-inflammatories, immunosuppressants, and sometimes surgery help control inflammation and prevent severe complications.
- Early and ongoing medical care is key to managing IBD and maintaining quality of life.
Bottom Line: IBD is a chronic condition, but with proper treatment and lifestyle adjustments, many people live full, active lives.

More IBD Resources
My top resources to learn more and find support.
Crohn's & Colitis Australia (Helpline: 1800 138 029)
Facebook Group: Crohn's and Colitis Queensland (IBD) Support
IBD Telephone Helpline & Nurseline: 1800 138 029
The Australian Council of Stoma Associations Inc (ACSA)
Crohn's & Colitis Foundation of America (CCFA)
IBD Passport (comprehensive information about travel with IBD)
Beyond Blue (Support Service: 1300 22 4636)
Lifeline Australia (Crisis Support: 13 11 14)
Want more?
The Ultimate IBD Handbook is a practical, compassionate, and empowering resource for anyone living with Inflammatory Bowel Disease (IBD), as well as their loved ones and caregivers.
This book offers real-life insights, expert-backed advice, and a touch of humour to help readers navigate everything from diagnosis and treatment to daily life, mental health, and relationships. Whether you’re newly diagnosed, struggling to manage symptoms, or supporting someone with IBD, this guide provides the knowledge, reassurance, and community you need to move beyond survival and truly thrive.
The Ultimate IBD Handbook
Share




